The quality of life of patients with multiple sclerosis and socio-demographic, physical and psycho-emotional Original article

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Marta Dąbrowska-Bender
Anna Staniszewska
Urszula Religioni
Aneta Duda-Zalewska
Marlena Kaczorek

Abstract

Background: Multiple sclerosis (MS) is a disease of the central nervous system (CNS), resulting from damage to the myelin sheath of nerve fibers. MS most commonly affects young people between twenty and forty years of age. A major problem patients are impaired physical, psychological, social, familial, sexual, and higher nervous activity. In turn, progressive, but unpredictable and highly individualized course of the disease in conjunction with the debilitating symptoms of the operation creates a chronic stress situation which affects negatively on the perceived quality of life.


Aim of the study: The aim of this study was to observe and know the subjective assessment of the quality of life of patients with multiple sclerosis in the functioning of the physical, psycho-emotional and taking into account socio-demographic and disease duration.


Material and methods: The study group consisted of 63 patients with multiple sclerosis who were treated at the National Rehabilitation Centre in Dabek near Mlawa. Material collected by diagnostic survey using a standardized MSIS-29 (Multiple Sclerosis Impact Scale).


Results: The study found that the disease significantly impairs the physical function of patients and interferes with their psycho-emotional sphere. At the same time were found to have statistically significant relationships between social factors – demographic, and variables, ie. Limitation in social life and recreation (p = 0.020), the need to stay at home due to health status (p = 0.012), shaking hands and legs (p = 0.006), a feeling of stiffness (p = 0.017), difficulty moving around the house (p = 0.019), urgent need to go to the toilet (p = 0.049), and dependence on other people connected with the exercise of different activities (p = 0.019).


Conclusions: Scale used MSIS-29 confirmed gradually progressive loss of physical and social patients with multiple sclerosis and has identified a number of disturbances in the area of psycho patients. At the same time pointed out the need for comprehensive care for patients for early diagnosis and treatment of depression, take physical and social, as well as improving the quality of life by planning for the long-term strategy of the population support.

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